Information
We provide information for families of children with complex neurodevelopmental needs
We provide information for families of children with complex neurodevelopmental needs
We provide information and signposting for families of children with complex neurodevelopmental needs
We also provide information in Easy Read format for families of children with complex neurodevelopmental needs
We also provide a page on AAC (augmentative and alternative communication) for families of children with communication difficulties
We are creating our first picture books, co-created with an autistic child about learning differently, hyperlexia. Read more about our picture books here.
Some children have significant differences in how they experience the world, such as noise, pain, or interoception.
Connecting I Coping I Daily living I Diagnosis I Environment I Health I Learning I Senses I Speech I Strengths
Parent Survey 2024
394 families responded to our survey. It asked about the complexity of their child’s needs, the information they wanted beyond a diagnosis, early reading and hyperlexia, and how neurodivergence is represented in children’s picture books.
said information beyond a diagnosis would be very or extremely useful (267 responses out of 338, 79%)
families said that Easy Read, social stories, visual pictures, interactive media / games, animated / video, and simple clear language were the types of resource most useful for their children.
331 parents responded to the question “What are the main barriers to accessing information about additional issues?`’
3 in 5
200 out of 331 parents said that there was a lack of information available about additional issues
1 in 2
159 out of 331 families said that they did not know where to find additional information
2 in 5
128 out of 331 said that information was available but not tailored to neurodiversity
2 in 5
131 out of 331 said that information was not available to help explain to their child
1 in 5
60 out of 331 said that information was not clear or easy to read (18%)
1 in 4
78 out of 331 said that information was not clear or backed up by evidence (24%)
1 in 25
14 out of 331 parents said that information was in a format that was hard for them to access
Growing Different Parent Survey 2024 – notes and limitations
394 families of neurodivergent children took part in our online survey. Most children were autistic (about 8 in 10). People chose to take part, so the figures show their experiences, not all children. We did not compare them with any other group, so they can’t show how common something is or what causes it. Some questions had more responses than others.
Please credit ‘Growing Different Parent Survey 2024‘ and read more in our survey insights page
This site gives general information, not medical advice. We share information and resources, but we can’t offer individual or one-to-one support. Always check with a professional before making decisions about your child.
Disclaimer
The content on this website is provided for general information only. It should not be construed as medical advice, and it is not intended to amount to advice on which you should rely. Before making any decisions based on the content of this website you are strongly advised to obtain professional or specialist advice.
Although we make reasonable efforts to update the information on our website, we make no representations, warranties or guarantees, whether express or implied, that the content on our website is accurate, complete or up-to-date, and we are not liable or responsible for any decision taken as a result. Please note that using automated summariser or translation tools may affect the accuracy of the information presented here.
The PIF Tick for trusted health information
We’re proud to hold the PIF Tick, the UK-wide quality mark for trusted, accessible health information. It is a sign of our commitment to clarity, inclusion, and evidence-based resources. Find out more about the PIF Tick here.
Supported by
This project has been made possible with funding from the National Lottery Community Fund and the CPCA (Cambridgeshire and Peterborough Combined Authority), delivered through Allia Impact Ltd.
